Email this article ANALYSIS OF THE MOTHER’S ROLE IN THE SEXUAL DEVELOPMENT OF ADOLESCENT GIRL WITH INTELLECTUAL DISABILITIES AT UPT SLB-E NEGERI PEMBINA PROVINCIAL LEVEL OF NORTH SUMATRA IN 2025
Abstract
Background: Adolescents with intellectual disabilities face significant challenges in understanding sexual and reproductive health (SRH) due to cognitive limitations, stigma, and lack of appropriate education. Parents, particularly mothers, play a central role in supporting their daughters’ self-care and protection during puberty. Objective: This study aimed to explore the lived experiences of mothers in providing sexual and reproductive health education to adolescent girls with intellectual disabilities. Methods: A qualitative phenomenological approach was used, involving in-depth semi-structured interviews with five mothers selected through purposive sampling. Data were analyzed using Colaizzi’s method, followed by member checking, triangulation, and audit trails to ensure credibility. Ethical approval was obtained from the Health Research Ethics Committee of Universitas Sumatera Utara. Results: Five main themes emerged: (1) mothers’ emotional journey, (2) understanding of sexual and reproductive health, (3) communication and parenting strategies, (4) social and cultural barriers, and (5) support and coping mechanisms. Mothers experienced mixed emotions—fear, shame, love, and responsibility—while navigating social stigma and limited knowledge. Conclusion: Mothers’ experiences reflect the complexity of raising daughters with intellectual disabilities within cultural and religious contexts. The findings highlight the importance of inclusive, family-centered SRHR education and psychological support to empower parents in guiding and protecting their children.
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Altundağ, S. (2024). Imparting genital hygiene skills to adolescents with intellectual disabilities attending a special education centre: A quasi-experimental study on effect of short education. International Journal of Developmental Disabilities, 70(1), 127–136. https://doi.
American Association on Intellectual and Developmental Disabilities. (2021). Intellectual disability: Definition, classification, and systems of supports (12th ed.). AAIDD.
Bowlby, J. (1996). Attachment and loss: Vol. 1. Attachment. Basic Books.
Bronfenbrenner, U. (1979). The ecology of human development: Experiments by nature and design. Cambridge, MA: Harvard University Press.
Dalimunthe, R. (2019). Hambatan orang tua dalam memberikan pendidikan seksual pada anak berkebutuhan khusus. Jurnal Pendidikan Khusus, 15(2), 85–94.
Farakhiyah, F., Raharjo, S. T., & Apsari, N. C. (2018). Peran orang tua dalam pendidikan seksual anak dengan disabilitas intelektual. Jurnal Pekerjaan Sosial, 1(1), 1–10. https://doi.org/10.24198/jps.v1i1.15779.
Guest, G., Namey, E., & Chen, M. (2020). A simple method to assess and report thematic saturation in qualitative research. PLoS ONE, 15(5), e0232076. https://doi.org/10.1371/journal.pone.0232076.
Hirschi, T. (1969). Causes of delinquency. University of California Press.
Poerwanti, E., Wulandari, R., & Pramono, S. E. (2023). Parental roles in providing reproductive health education for children with intellectual disabilities. Journal of Special Education and Rehabilitation, 14(1), 45–55.
Poerwanti, S. D., Makmun, S., Paramitha, N. A., & Kusumaningrum, N. D. (2020). Tubuhku milikku: Pengenalan otoritas tubuh anak sebagai upaya pencegahan kekerasan seksual. Jurnal Intervensi Sosial (JINS), 2(1), 1–9. https://talenta.usu.ac.id/is.
UNFPA. (2022). International technical guidance on sexuality education: An evidence-informed approach. United Nations Population Fund. https://www.unfpa.org.
UNICEF. (2022). Guidance on disability-inclusive sexual and reproductive health education. United Nations Children’s Fund. https://www.unicef.org/reports.
Wahyuni, S. (2018). Pengetahuan orang tua tentang kesehatan reproduksi dan perannya dalam pendidikan seksual anak berkebutuhan khusus. Jurnal Kesehatan Masyarakat, 13(3), 210–218.
World Health Organization. (2021). Guidelines on the management of sexual and reproductive health of adolescents with disabilities. WHO Press. https://www.who.int.
DOI: http://dx.doi.org/10.30829/jgsims.v6i2.26400
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